Seminars in Fetal & Neonatal Medicine
Volume 13, Issue 2 , Pages 99-102 , April 2008

Cultural variation in values attached to informed choice in the context of prenatal diagnosis

References 

  1. Andrews LB, Fullarton JE, Holtzman NA, Motulsky AG. Assessing genetic risks: implications for health and social policy. Washington DC: National Academy Press; 1994;
  2. O'Connor A, legare F, Stacey D. Risk communication in practice: the contribution of decision aids. BMJ. 2004;327:736–740
  3. National Screening Committee . Information sheet on antenatal screening for Down syndrome. Available at: http://www.nsc.nhs.uk/pdfs/info_sheet_downs.pdf(accessed on 17 December 2007)
  4. World Health Organization . Proposed international guidelines on ethical issues in medical genetics and genetic services. 1998;
  5. Wertz DC, Fletcher JC. Genetics and ethics in global perspective. Dordrecht: Kluwer Academic Publishers; 2004;
  6. Marteau TM, Dormandy E, Michie S. A measure of informed choice. Health Expect. 2001;4:99–108
  7. O'Neill O. Autonomy and trust in bioethics. Cambridge: Cambridge University Press; 2002;
  8. Fagan A. Challenging the bioethical application of the autonomy principle within multicultural societies. J Appl Philos. 2004;21:15–31
  9. Jafarey AM, Farooqi A. Informed choice in the Pakistani milieu: the physicians' perspective. J Med Ethics. 2005;31:93–96
  10. Hofstede GH. Culture, consequences: international differences in work-related values. London: Sage Publications; 1980;
  11. Fox R. Informed choice in screening programmes: do leaflets help? A critical literature review. J Public Health. 2006;28(4):309–317
  12. Lewis C, Mehta P, Kent A, Skirton H, Coviello D. An assessment of written patient information provided at the egentic clinic and relating to genetic testing in seven European countries. Eur J Hum Genet. 2007;1–11
  13. Hall S, Chitty L, Dormandy E, Hollywood A, Wildschut HI. Undergoing prenatal screening for Down's syndrome: presentation of choice and information in Europe and Asia. Eur J Hum Genet. 2007;15:563–569
  14. Van den Heuvel A, Hollywood A, Hogg J, et al. Informed choice to undergo prenatal screening for thalassaemia: a description of written information given to pregnant women in Europe and beyond. Prenat Diagn, submitted for publication.
  15. Degner LF, Kristjanson LJ, Bowman D, et al. Information needs and decisional preferences in women with breast cancer. J Am Med Assoc. 1997;277:1485–1492
  16. Gilani AS, Jadoon AS, Qaiser R, et al. Attitudes towards genetic diagnosis in Pakistan: a survey of medical and legal communities and parents of thalassemic children. Community Genet. 2007;10:140–146
  17. Beaver K, Jones D, Susnerwala S, et al. Exploring the decision-making preferences of people with colorectal cancer. Health Expect. 2005;8:103–113
  18. Mazur DJ, Hickam DH, Mazur MD, Mazur MD. The role of doctor's opinion in shared decision making: what does shared decision making really mean when considering invasive medical procedures?. Health Expect. 2005;8:97–102

PII: S1744-165X(07)00156-4

doi: 10.1016/j.siny.2007.12.010

Seminars in Fetal & Neonatal Medicine
Volume 13, Issue 2 , Pages 99-102 , April 2008